For those of you have been following along the journey of Tuula Vintage blogger Jessica Stein and her daughter Rumi’s rare chromosome disorder, this week brought about some positive news for the family – with Jessica sharing on Instagram that Rumi now no-longer has to always wear her nasogastric feeding tube (nasal tube).
Born with Mosaic Trisomy 2 – a disease that has had less than 10 documented cases, 14-month old Rumi has had to spend a lot of her life in and out of hospitals. But this latest development has definitely been welcomed by Jessica and partner Patrick Cooper.
First posting a picture to Instagram of Rumi without her tube last Friday with the caption: “Our happy tubie free little girl ?” – Jessica posted a follow-up message yesterday, writing: “Thank you for everyone’s messages of support and celebration over the last few days about Ru being free of her tubie, it has certainly been life changing for us all!
“Her tubie does come and go as she needs some extra help and health, so please don’t be too worried if you see it every now and again. She’s conquered so much to get here and we couldn’t be prouder ??✨”
We hope this new development for Rumi is a good sign for things to come.
All images: Tuula Vintage
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